First of all apologies for not blogging for so long. A lot has been happening with Ashley’s medical condition which has taken up a lot of my time and I have been too darn tired to write.

On a much brighter note – yesterday was my birthday. 42 years on the planet! My mum and dad came and babysat the little one, who charmingly kept saying ‘happy birday mummy’ all day and my second eldest daughter took me out for a surprise outing.

First she took me shopping and bought me a new lipstick and some perfume (hope this doesn’t mean that I need brightening up and I smell bad as I’m getting older?) then she took me our for high tea at the restaurant where she works.

The restaurant overlooks the beach and is very funky. We sat in high back chairs and enjoyed a selection of savouries and sweets. The staff had a good laugh at serving Jessie because she is the junior there. We took a ‘doggy bag’ home because there was way too much for us to finish.

My family all got together and got me a fantastic camera so I will warn you now in definitely showing signs of becoming a photography nerd! The baby is already sick of me and as soon as she sees the camera she holds her little hand up and shouts ‘NO!’ at me.

All in all it was a lovely day.




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Internal Reshuffle

I’ve just been re-decorating the twins room in preparation for Ashley’s operation. Ashley normally sleeps on the bottom bunk but she won’t be able to get in or out of this bed after her operation so we have had a big reshuffle of sleeping arrangements. The walls have been repainted a very pale pink and we have bought a new bed – one that can fit both Ashley and I in as I will have to sleep next to her after she comes home.

Ashley fell in love with the bed and for once I put my sensible side on hold. She calls it her ‘princess’ bed and given the amount of time she will be spending in it I thought it was only right that she should choose something that made her happy. India is going to graduate from her cot to the bottom bunk, so there will be four of us sleeping in the one room for a while. We had our first trial run last night with Ashley and Carys calling it ‘girl camp’.

We had bedtime stories all squashed in one bed and then it was time for lights out. India lasted about two minutes in the bottom bunk before joining Ashley and I in the big bed and I spent the rest of the night confined to a narrow strip of bed trying not to fall out. I woke this morning in serious need if a chiropractor and a strong coffee. Not a huge success, but Ashley did tell me that she felt like a real princess waking up in her bed, so not a total failure either. Perhaps a work in progress?




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Melbourne part 3

We had originally been scheduled to have further tests and consults for Ashley on Wednesday but these were cancelled by the hospital which left us with a free day. We decided to take the kids to Ballarat, a gold fields city about an hour out of Melbourne.

Ballarat is known as the birthplace of the nation, a place synonymous with the Eureka Stockade, Ned Kelly and the gold rush. It’s a beautiful historic town. They have a pioneer town there – a replica of what the town was like originally and you can have a try panning for gold. Mind you India was the only one really interested in this activity.

Ballarat is also the home to a memorial for all Australian prisoners of war. Both Steve’s father and grandfather are listed on it so we took the kids to visit. There we had a drama. As Ashley’s condition is deteriorating she is having a lot more falls. As we were looking at the memorial she suddenly pitched head first into what would have been a shallow pool, but mercifully was empty, narrowly missing hitting her head on the stone. She went into shock, shaking, vomiting and momentarily losing her memory. Not quite the ending to our trip that we were hoping for. She’s all ok now though and looking forward to coming home.







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Melbourne part 2

Melbourne Royal Children’s Hospital is amazing! The foyer is more like a luxury hotel than a children’s hospital. There is a huge aquarium, a giant wall mounted iPad and even a meerkat colony.

After our consult we took the kids to Melbourne Zoo which is just down the road from the hospital. The zoo is so well designed and easy for the kids to view the animals, even from a wheelchair. We’ve been pretty lucky with the weather and had managed to dodge the rain but as we finished our zoo trip the heavens opened – not rain but a deluge! We took shelter outside the cafe but unfortunately so did every available pigeon in the area. Here’s the problem with this – I’m scared of birds.

Completely illogical but I hate the sound of their wings flapping and the touch of their feathers. As we sat there some people got up and left the remains of their food on the table and the scene that ensued was like something from Alfred Hitchcocks ‘the birds’. Feathered feeding frenzy, wings flapping, round my feet and even touching my hair. At this stage picture grown woman curled, fetal style, into plastic chair. Rain be damned – I was out of there! Much to the amusement of my family and most onlookers. India even crowed ‘mummy funny’ at me.







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Melbourne – part 1

We’ve come to Melbourne for a consult with Ashley’s surgeon. It’s the other side of Australia to where we live – about 3 hours flight. India managed to scream and tantrum for all but 15 minutes of that flight. If you really want to alienate 250 people in a short space of time then a screaming toddler is definitely your best bet. With a child who hates to be restricted and boycotts all forms of child restraint, this was never destined to be pretty. My other five children have all been good travelers – not this one! She finally fell asleep as we began our descent into Melbourne airport.

The next day, as we trekked the pavements searching for some way to amuse our offspring in a big city, we came across the community gardens in St Kilda. Originally a bowling green. The area has been sub-divided into allotments. There was a mix of flowers and vegetables being grown, chickens and guinea pigs, and lots of quirky art work interspersed amongst it all. There’s a small lawned area and a community kitchen here too. The perfect place for our ‘free-range chicken’ to stretch her legs and play.

It was such a lovely spot to spend some time and I ran into a girl I went to school with 25 years ago! What are the chances of that? It gave Steve and I a chance to relax (briefly) and watch our peace loving hippy child in her element!








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An Evening at the Ballet

Ashley and I got to go to the ballet last night. WA ballet company are performing Pinocchio and our friends had some spare tickets. Ashley’s little friend Talia also has cerebral palsy and has had the same operation that Ashley is about to have. They are so similar in many ways and Ashley was very excited to have a ‘grown up’ evening out with her friend.

It was a fantastic performance. Quite the best I have seen in a long while. A mixture of ballet, puppetry and song. Whoever was responsible for costumes was really to be commended. It was a late night but well worth it and any evening at His Majesty’s theatre is always a treat.





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My Constant

I am so very blessed with my father. I really couldn’t have asked for better. Given that my father’s childhood was far from idyllic, and that his father certainly didn’t spare the rod or spoil the child, it could have turned out very differently. I’m so grateful that my father was the polar opposite of his.

I remember when I was about four or five years old my dad had a jumper that had a suede front and knitted sleeves. It always retained a faint leather smell and this, combined with traces of pipe smoke and aftershave, created a comforting cocktail of ‘Daddy’ smells. There are times when I wish that I was still small enough to crawl into the crook of his arm,and rest my cheek against the soft suede, and know that Daddy would keep me safe.

My Dad has brought so much into my life. He has boundless patience, imagination and a wicked sense of humor. Dad would always go the extra mile for us. We used to go on one family holiday a year to a friend’s cottage by the river. My dad would save all his small coins for the year and then divide them into two exciting parcels. He would make a treasure map for my sister and I, staining it with tea and burning the edges just to make it more exciting. When we arrived at the cottage dad would go off and hide the coin parcels and then present my sister and I with the treasure maps that would lead us to them. That would be our spending money for the holidays. I still remember the excitement if that treasure hunt. And with two little girl’s who dreamed of being prima ballerinas he even had to don tights and pretend to be Rudolph Nureyev – and yes Dad I still have the photos!

Throughout my adult life my dad has been my calm constant. Even in the rough seas of life’s troubles my dad has been like a lighthouse. Always there for me, shedding light to reassure me that there are safe waters close at hand. Always his ridiculous sense of humor was close at hand or a reassuring hug that needed no words.

He has also been an amazing grandfather and I’m so grateful that my children have had such a wonderful role model in their lives. The epitome of a true gentleman, a father and a friend.





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